She faces a rare genetic disease with great courage

This story is about the overcoming of Karina Rodini, from Curitiba (PR). She has a tumor on her legs, but that doesn’t stop her from pursuing her dreams.

O Incredible.club comes to show you that life is often an eternal test of overcoming, but that you can’t give up fighting.

“In Brazil, there are only specialists in Minas Gerais. I really hope that a doctor knows about my case and invites me for a consultation or something…”

Courtesy of Karina Rodini for Incrivel.club

Karina had a birthmark on her thigh, like a lot of people have, and it was even pretty. But at age 16 the seemingly innocent, café au lait stain began to change shape, color and size. The diagnosis: a neurofibromatosis, a rare genetic disease that causes a series of tumors.

“It’s difficult for you to be in one place and people leave because they think they will be contaminated by a disease that they will catch from you…”

Neurofibromatosis, as mentioned, is a rare, incurable, genetic, non-contagious disease that affects the skin with the appearance of nodules and non-cancerous tumors. In Karina’s case, it affected both legs, leaving one of the parts bigger and more swollen. Because of the problem, Karina faces discrimination and prejudice from people who do not know the disease.

” 2019 coming in and it will be another year of struggles, of victories. I don’t want to ask for too much or make so many promises, I want to live one day at a time.”

Discrimination is one of the most difficult parts of Karina’s journey, but she doesn’t let herself get discouraged. She managed to finish high school, today she takes a course in Administration and an internship.

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” I speak from the brain and the heart I see selfishness, prejudice from brother to brother Life is not the problem, it’s battle, challenge Every obstacle is a lesson, I announce.”

But Karina’s big dream is that people become aware of the problem, to end prejudice. To get the treatment, which is very expensive, she launched a fundraising campaign on a crowdfunding site. You can help by clicking here.

Did you like Karina’s story? Do you know someone or have a condition that causes discrimination? Tell us.